fragmented.ME …
journal ...

a week with ME … Q4

Reading time: 8 Minutes

I know I keep my ‘fortnightly catch up …’ journal posts, but this blog post is a more in depth journal bog post about living with ME.

   . . .   a   w e e k   w i t h   M E   . . .   

day 1: Monday … 

morning time

Morning time is extremely difficult for me. I am pretty sure it’s an extremely difficult time of the day for most people with any level of ME, but when you are at the severe end this could be the hardest part of your day.

In my case, it’s pretty much like Groundhog Day. I open my eyes, assess where hurts most, determine what kind of medication I might need and assess how to face a day going from the bed to the settee. And that’s about it, doing anything else is going to make me even sicker than I already am. This is my life day after day, month after month, year upon year.

As well, as if that’s not difficult enough to deal with, morning, is the time when everybody else is getting ready to fulfil themselves. All I can do is watch on … and imagine what I might do if I were well … or fantasise about what I’m missing out on …

And that’s only if I am not in unimaginable pain as is the case most days. Be it physical or psychological. Because, when I am in too much pain then that is what will consume me, which is how pretty much all of my days begin.

Overwhelming pain …

day 2: Tuesday …

eating

Eating with ME, especially when the illness is severe, can be a logistical nightmare. At the worse end you are tube fed and at the better end of severe you can eat but not much and not without a very inconsistent price to pay.

Personally, I eat a fraction of what I used to eat (without the benefits of weight loss because there is none). Prior to mealtime and eating I have to assess how I am, what my HR is telling me, and ask myself how did this ‘food’ make me feel the last time I ate it. There is no just eating it, either because you like it or because it’s good for you or even simply because you just fancy it, everything has to be considered based on the past, present and future.

Every single morsel has to be thought about …

One of the worse foods for me now is raw foods, fruits and vegetables, which are the healthiest kind of foods that we all need. Yet, they all give me oral allergy syndrome and can make me feel weak and shaky and can make me cough for hours on end.

Breads, which is definitely one of my favourite foods of all time, can make me extremely poorly and put my system and body into overdrive.

If I eat, too early, too late, too little, too much, I pay a price. With extra illness, migraine, pain, allergies, digestive issues, nausea, heartburn, exhaustion, feeling weak and like I might collapse are just a few of the issues I have.

day 3: Wednesday … 

migraine

If you have ever had migraine then you will know and if you haven’t you really don’t want to know and will probably struggle to comprehend what I am going to say regarding the condition. Migraine is more akin to severe headache with stroke and food poisoning than severe headache alone …

So please, whatever you do, DO NOT confuse migraine with headache, they are nothing alike.

The NHS describes migraine as: usually a moderate or severe headache felt as a throbbing pain on 1 side of the head. Many people also have symptoms such as feeling sick, being sick and increased sensitivity to light or sound. Migraine is a common health condition, affecting around 1 in every 5 women and around 1 in every 15 men.

This description, in my opinion, does cut it.

For me, a typical migraine is never moderate in any way and if I do have moderate ones I tend to classify them as mild because my normal ones are always always very severe. I can vomit every 15 mins, even when there’s nothing left to vomit, for at least ten hours straight, coupled with severe head / eye pain, vertigo, hallucinations, and an overall feeling of serious illness. So getting anti-sickness that works is really important, it can mean that the main migraine stage can be reduced to five hours over twelve. As well, there are the other terrible neurological symptoms that nothing fixes, except sleep. Plus, the pain is like nothing I’ve ever experienced.

I would like to be able to explain migraine in words but it really is something that you have to experience to understand …

day 4: Thursday … 

exhaustion …

When we talk about the exhaustion of ME, we are referring to the kind of exhaustion that you feel as not simple tiredness or an awful tiredness that is relieved by sleep. It’s an exhaustive tiredness that actually feels worse after sleep and that no amount of resting fixes.

It is an exhaustion of the energy system. If you think of it in terms of money balances. Some of us are wealthy and can’t even spend what we earn in interest and so our balance remains more than we could ever need. While others are always in deficit, which risks pushes them to bankruptcy.

Those with ME energy deficit are so close to energy bankruptcy that something as simple as standing will take them into overdrawn and the longer they stay that way, in overdrawn, the more it costs them. This cycle of being in greater energy deficit continues, because of how society is set up with the need to earn to live as well as other cultural systems that are in place, and so we become sicker and sicker to the point of living in a death like state. We tend to push ourselves to the point of not being able to do ‘a’ thing any more.

We are now experiencing a living death …

day 5: Friday … 

medical appointments …

These are one of the worse parts of ME to navigate.

In reality, when you are sick that’s when you need medical help but everything involved in getting it perpetuates the energy deficit spoke about in the above section.

Don’t go to the GP and you will be viewed as not as sick as you claim to be. Do go and you will expend energy that you do not really have and you will inadvertently make yourself sicker.

During ‘covid lockdown’ the way medical appointments changed likely suited those with ME much better than the former face to face methods. Yet now, after ‘lockdown’, I find I am ever struggling to access these virtual appointments. I find this totally soul destroying as it tells me that I am not believed, nor am I important enough.

I need medical care and medical help so very much …

Yet, I find myself in a catch 22 setup …

day 6: Saturday … 

night time …

For me, night time can be both the best and the worst …

At night I am often my physically best. Yet, I know for sure that once I have been to sleep I will feel utterly dreadful again and there are no guarantees regarding how ‘good’ or ‘bad’ this poorliness will actually be..

Good will be pain that my medications will actually work for.

Bad will be where I don’t know how I will cope while I wait for them to work, and this can often take several doses before I can cope.

Either way, (I had something I wanted to say here, flowing on from the above, but I’ve lost it … completely lost it … if it comes back to me I will update and add it in) …

Either way, I’m snookered and still suffering …

day 7: Sunday … 

loneliness & loosing family and friends 

Oh my … where do I begin on this one …

As I write this (2021), I am 59 years of age so you would think that I might have lots of support in the form of family and friends …

Sadly, this is not true for me …

Family: my dad, who was my best advocate and cared so very much, died of a massive heart attack when he was only 53 and my mum died aged 74 of lung cancer. I’m afraid our relationship, mine with my mother, was never really good, our roles were always switched, with me being mother and her my child. She also set up triangulation with my two sisters. Who are both done with me, their words not mine, for reasons I won’t go into but are as fucked up as their perspective on what I ought to allow … say no more. I do have an aunt, from my dad’s side, that keeps in touch and always offers anything I need, which I don’t ever accept but do value her love, kindness and concerns and more than anything I love how she keeps contact with me.

Friends: another area where I’ve lost most old friends who seem to feel that our relationship has been unbalanced and in my favour too because they have to put into more effort than I can. Over the years I’ve realised there is no need for me to feel guilt about this as I am seriously sick and they simply don’t realise this. I do have a few faraway friends that keep in touch digitally. I class the online social media friends I have as my main true friends and the two other friends whom I have known forever.

I would absolutely love to have a friend or two that checks in with me on a daily basis and that on my worse days does something kind for me, even if it’s just keep checking in and not expecting anything in return. This would feel so much like I did have friendship to fall upon in my darkest times.

But, sadly, I do not have this …

The closest I have to this is that I am married and so my husband will see when I’m really bad and I also have two grown boys, one of who will check in with me most days but always if I’ve been extra poorly on the previous day(s), …

what kind of a week was this …

This was actually a mixed week consisting of some of the main symptoms that I, and others with ME, suffer on a daily basis. I used this as an opportunity to advocate and hopefully enlighten you as to how difficult living with severe ME can be.

follow up …

I decided for this last quarter for each day to take, and discuss, one aspect of living with ME in order to try and help you understand just how difficult living with ME can be. I will write from the standpoint of myself as a person with severe ME, but this information can be transferred to the moderate and the mild, and maybe even the very severe, by recognising that to one degree or another everybody with ME suffers in much similar ways.

a week with ME … series schedule (March, June, September, December, to be posted either end of the corresponding month or at the beginning of the following month).

Let me know below what you think …

 fragmented.ME xXx

Let’s us know what you think and help us do better ...

close
fragmented.ME news ...
fragmented.ME news ...

Oh hi there 👋
It’s nice to meet you.

Sign up to receive a notification each time we post new content ...

(usually twice a week, but this will be no more than three times a week)

Read our privacy policy for more info.

0
0

My birth name is Denise, but I’m know as Bella to those who love me. I have a first class honours degree in education & psychology and a strong passion to keep learning and educating others ... I have severe ME/CFS and lots of other chronic illnesses and I started this blog as an expansion to my instagram page, where I advocate for chronic illness. I am married and have two grown up boys, or should I say young men. I have three gorgeous grandchildren, one boy and two girls. And despite being chronically sick and housebound I am mostly happy. 🥰

Don`t copy text!
 

newsletter (subscribe) ...

Please use this form if you would like to get notified when we update or add new blogs. You’ll hear from us soon!

If you have any other suggestions for ‘anything’ you would like me to write about or if you would like to contribute your own piece to fragmented.ME, please contact me using this contact form.

Leave this field blank

... share this page ...

10 steps to practicing Radical Acceptance
according to DBT’s founder, Marsha Linehan:

 

1.  Observe that you are questioning or fighting reality (“it shouldn’t be this way”)

2.  Remind yourself that the unpleasant reality is just as it is and cannot be changed (“this is what happened”)

3.  Remind yourself that there are causes for the reality (“this is how things happened”)

4.  Practice accepting with your whole self (mind, body, spirit) - Use accepting self-talk, relaxation techniques, mindfulness and/or imagery

5.  List all of the behaviors you would engage in if you did accept the facts and then engage in those behaviors as if you have already accepted the facts

6.  Imagine, in your mind’s eye, believing what you do not want to accept and rehearse in your mind what you would do if you accepted what seems unacceptable

7.  Attend to body sensations as you think about what you need to accept

8.  Allow disappointment, sadness or grief to arise within you

9.  Acknowledge that life can be worth living even when there is pain

10.  Do pros and cons if you find yourself resisting practicing acceptance

Logo of ijpsych

2009 Oct-Dec; 51(4): 239–241.
doi: 10.4103/0019-5545.58285: 10.4103/0019-5545.58285
PMCID: PMC2802367
PMID: 20048445

The biochemistry of belief

Address for correspondence: Dr. TS Sathyanarayana Rao, Department of Psychiatry, JSS University, JSS Medical College Hospital, M.G. Road, Mysore - 570 004, India. E-mail: moc.oohay@91oarsst
This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

“Man is what he believes”

Anton Chekhov

Beliefs are basically the guiding principles in life that provide direction and meaning in life. Beliefs are the preset, organized filters to our perceptions of the world (external and internal). Beliefs are like ‘Internal commands’ to the brain as to how to represent what is happening, when we congruently believe something to be true. In the absence of beliefs or inability to tap into them, people feel disempowered.

Beliefs originate from what we hear - and keep on hearing from others, ever since we were children (and even before that!). The sources of beliefs include environment, events, knowledge, past experiences, visualization etc. One of the biggest misconceptions people often harbor is that belief is a static, intellectual concept. Nothing can be farther from truth! Beliefs are a choice. We have the power to choose our beliefs. Our beliefs become our reality.

Beliefs are not just cold mental premises, but are ‘hot stuff’ intertwined with emotions (conscious or unconscious). Perhaps, that is why we feel threatened or react with sometimes uncalled for aggression, when we believe our beliefs are being challenged! Research findings have repeatedly pointed out that the emotional brain is no longer confined to the classical locales of the hippocampus, amygdala and hypothalamus.[1] The sensory inputs we receive from the environment undergo a filtering process as they travel across one or more synapses, ultimately reaching the area of higher processing, like the frontal lobes. There, the sensory information enters our conscious awareness. What portion of this sensory information enters is determined by our beliefs. Fortunately for us, receptors on the cell membranes are flexible, which can alter in sensitivity and conformation. In other words, even when we feel stuck ‘emotionally’, there is always a biochemical potential for change and possible growth. When we choose to change our thoughts (bursts of neurochemicals!), we become open and receptive to other pieces of sensory information hitherto blocked by our beliefs! When we change our thinking, we change our beliefs. When we change our beliefs, we change our behavior.

A mention of the ‘Placebo’ is most appropriate at this juncture. Medical history is replete with numerous reported cases where placebos were found to have a profound effect on a variety of disorders. One such astounding case was that of a woman suffering from severe nausea and vomiting. Objective measurements of her gastric contractions indicated a disrupted pattern matching the condition she complained of. Then a ‘new, magical, extremely potent’ drug was offered to her, which would, the doctors proclaimed, undoubtedly cure her nausea. Within a few minutes, her nausea vanished! The very same gastric tests now revealed normal pattern, when, in actuality, she had been given syrup of ipecac, a substance usually used to induce nausea! When the syrup was presented to her, paired with the strong suggestion of relief of nausea, by an authority figure, it acted as a (command) message to the brain that triggered a cascade of self-regulatory biochemical responses within the body.[2] This instance dramatically demonstrates that the influence of placebo could be more potent than expected drug effect.

An important observation was that, part of the placebo response seemed to involve the meaning of the disorder or the illness to the individual. In other words, the person's belief or how she/he interprets (inter-presents or internally represents) directly governs the biological response or behavior. Another remarkable study involved a schizophrenic. This woman was observed to have split personality. Under normal conditions, her blood glucose levels were normal. However, the moment she believed she was diabetic, her entire physiology changed to become that of a diabetic, including elevated blood glucose levels.[3]

Suggestions or symbolic messages shape beliefs that in turn affect our physical well being. Several cases of ‘Disappearance of warts’ have been reported by Ornstein and Sobel wherein they ponder on how the brain translates the suggestions (sometimes using hypnosis) into systematic biochemical battle strategies such as chemical messengers sent to enlist the aid of immune cells in an assault on the microbe-induced miniature tumor or probably small arteries are selectively constricted, cutting off the vital nutrient supply to warts but not touching the neighboring healthy cells.[2]

Findings of carefully designed research indicate that our interpretation of what we are seeing (experiencing) can literally alter our physiology. In fact, all symptoms of medicine work through our beliefs. By subtly transforming the unknown (disease/disorder) into something known, named, tamed and explained, alarm reactions in the brain can be calmed down. All therapies have a hidden, symbolic value and influence on the psyche, besides the direct specific effect they may have on the body.

Just as amazingly life-affirming placebos are, the reverse, “Nocebo' has been observed to be playing its part too. It is associated with negative, life-threatening or disempowering beliefs. Arthur Barsky, a psychiatrist states that it is the patient's expectations – beliefs whether a drug or procedure works or will have side effects – that plays a crucial role in the outcome.[4]

The biochemistry of our body stems from our awareness.[5] Belief-reinforced awareness becomes our biochemistry. Each and every tiny cell in our body is perfectly and absolutely aware of our thoughts, feelings and of course, our beliefs. There is a beautiful saying ‘Nobody grows old. When people stop growing, they become old’. If you believe you are fragile, the biochemistry of your body unquestionably obeys and manifests it. If you believe you are tough (irrespective of your weight and bone density!), your body undeniably mirrors it. When you believe you are depressed (more precisely, when you become consciously aware of your ‘Being depressed’), you stamp the raw data received through your sense organs, with a judgment – that is your personal view – and physically become the ‘interpretation’ as you internalize it. A classic example is ‘Psychosocial dwarfism’, wherein children who feel and believethat they are unloved, translate the perceived lack of love into depleted levels of growth hormone, in contrast to the strongly held view that growth hormone is released according to a preprogrammed schedule coded into the individual's genes!

Providing scientific evidence to support a holistic approach to well being and healthcare, Bruce Lipton sheds light on mechanism underlying healing at cellular level. He emphasizes that ‘love’ is the most healing emotion and ‘placebo’ effect accounts for a substantial percentage of any drug's action, underscoring the significance of beliefs in health and sickness. According to him, as adults, we still believe in and act our lives out based on information we absorbed as children (pathetic indeed!). And the good news is, we can do something about the ‘tape’ our subconscious mind is playing (ol' silly beliefs) and change them NOW.[6] Further recent literature evidences provided knowledge based on scientific principles of biology of belief. There are limited studies on clinics of traditional beliefs and if we get more scientific data, we can use these traditional systems in clinical mental health management. Human belief system is formed by all the experiences learned and experimented filtered through personality.[7] The senses to capture inner and outer perceptions have higher brain potentials. Some questions that arise in this context are, does the integration and acceptance of these perceptions result in the establishment of beliefs? Does the establishment of these beliefs depend on proof demonstrations? The proofs might be the perceptions, which we can directly see or having scientific proof or custom or faith.[8,9] Beliefs are developed as stimuli received as trusted information and stored in the memory. These perceptions are generalized and established into belief. These beliefs are involved in the moral judgment of the person. Beliefs help in decision-making. Bogousslavsky and Inglin explained that, how some physicians were more successful by taking an account of patient beliefs. Beliefs influence factors involved in the development of psychopathology. They also influence the cognitive and emotional assessment, addictiveness, responses to false positives and persistent normal defensive reactions. Total brain function is required in stabilizing the belief and in responding to environmental system. Some of the brain regions and the neural circuits are very important in establishing beliefs and executing emotions. Frontal lobes play a major role in beliefs. Mental representations of the world are integrated with sub-cortical information by prefrontal cortex. Amygdala and Hippocampus are involved in the process of thinking and thus help in execution of beliefs. NMDA receptor is involved in thinking and in the development of beliefs. These beliefs are subjected to challenge. A belief that is subjected to more challenges becomes stronger. When a new stimulus comes, it creates distress in the brain with already existing patterns. The distress results in the release of dopamine (neurotransmitter) to transmit the signal.[10,11] Research findings of Young and Saxe (2008) revealed that medial prefrontal cortex is involved in processing the belief valence.[12] Right temporoparietal junction and precuneus are involved in the processing of beliefs to moral judgment. True beliefs are processed through right temporoparietal junction.[13,14] Saxe (2006) explained that beliefs judging starts at the age of five years citing example of judging of belief questions on short stories by the children.[15] Belief attribution involved activating regions of medial prefrontal cortex, superior temporal gyri and hippocampal regions. Studies by Krummenacher et al, have shown that dopamine levels are associated with paranormal thoughts suggesting the role of dopamine in belief development in the brain.[16] Flannelly et al, illustrated on how primitive brain mechanisms that evolved to assess environmental threats in related psychiatric disorders.[17] Also were highlighted the issues such as the way beliefs can affect psychiatric symptoms through these brain systems. The theories discussed widely are related to (a) link psychiatric disorders to threat assessment and (b) explain how the normal functioning of threat assessment systems can become pathological. It is proposed that three brain structures are implicated in brain disorders in response to threat assessment and self-defense: the regions are the prefrontal cortex, the basal ganglia and parts of limbic system. The functionality of these regions has great potential to understand mechanism of belief formation and its relevance in neurological functions/dysfunctions. Now it is clear that biology and physiology of belief is an open area for research both at basic and clinical level. The future directions are to develop validated experimental or sound theoretical interpretation to make ‘BELIEF’ as a potential clinical management tool.

Perceptual shifts are the prerequisites for changing the belief and hence changing the biochemistry of our body favorably. Our innate desire and willingness to learn and grow lead to newer perceptions. When we consciously allow newer perceptions to enter the brain by seeking new experiences, learning new skills and changed perspectives, our body can respond in newer ways –this is the true secret of youth. Beliefs (internal representations/interpretations) thus hold the magic wand of remarkable transformations in our biochemical profile. If you are chasing joy and peace all the time everywhere but exclaim exhausted, ‘Oh, it's to be found nowhere!’, why not change your interpretation of NOWHERE to ‘NOW HERE’; just by introducing a gap, you change your awareness – that changes your belief and that changes your biochemistry in an instant!

Everything exists as a ‘Matrix of pure possibilities’ akin to ‘formless’ molten wax or moldable soft clay. We shape them into anything we desire by choosing to do so, prompted, dictated (consciously or unconsciously) by our beliefs. The awareness that we are part of these ever-changing fields of energy that constantly interact with one another is what gives us the key hitherto elusive, to unlock the immense power within us. And it is our awareness of this awesome truth that changes everything. Then we transform ourselves from passive onlookers to powerful creators. Our beliefs provide the script to write or re-write the code of our reality.

Thoughts and beliefs are an integral part of the brain's operations. Neurotransmitters could be termed the ‘words’ brain uses to communicate with exchange of information occurring constantly, mediated by these molecular messengers. Unraveling the mystery of this molecular music induced by the magic of beliefs, dramatically influencing the biochemistry of brain could be an exciting adventure and a worth pursuing cerebral challenge.

REFERENCES

1. Candace Pert. Molecules of emotion: Why you feel the way you feel. New York, USA: Scribner Publications; 2003. ISBN-10: 0684846349.
2. Ornstein R, Sobel D. The healing brain: Breakthrough discoveries about how the brain keeps us healthy. USA: Malor Books; 1999. ISBN-10: 1883536170.
3. Robbins A. Unlimited power: The new science of personal excellence. UK: Simon and Schuster; 1986. ISBN 0-7434-0939-6.
4. Braden G. The spontaneous healing of belief. Hay House Publishers (India) Pvt. Ltd; 2008. ISBN 978-81-89988-39-5.
5. Chopra D. Ageless body, timeless mind: The quantum alternative to growing old. Hormony Publishers; 1994. ISBN -10: 0517882124.
6. Lipton B. The biology of belief: Unleashing the power of consciousness, matter and miracles. Mountain of Love Publishers; 2005. ISBN 978-0975991473.
7. Bogousslavsky J, Inglin M. Beliefs and the brain. Eur Neurol. 2007;58:129–32. [PubMed: 17622716]
8. Gundersen L. Faith and healing. Ann Intern Med. 2000;132:169–72. [PubMed: 10644287]
9. Mueller PS, Plevak DJ, Rummans TA. Religious involvement, spirituality, and medicine: Implications for clinical practice. Mayo Clin Proc. 2001;76:1225–35. [PubMed: 11761504]
10. Patel AD, Peretz I, Tramo M, Labreque R. Processing prosodic and musical patterns: A neuropsychological investigation. Brain Lang. 1998;61:123–44. [PubMed: 9448936]
11. Tramo MJ. Biology and music. Music of the hemispheres. Science. 2001;291:54–6. [PubMed: 11192009]
12. Young L, Saxe R. The neural basis of belief encoding and integration in moral judgment. Neuroimage. 2008;40:1912–20. [PubMed: 18342544]
13. Aichhorn M, Perner J, Weiss B, Kronbichler M, Staffen W, Ladurner G. Temporo-parietal junction activity in theory-of-mind tasks: Falseness, beliefs, or attention. J Cogn Neurosci. 2009;21:1179–92. [PubMed: 18702587]
14. Abraham A, Rakoczy H, Werning M, von Cramon DY, Schubotz RI. Matching mind to world and vice versa: Functional dissociations between belief and desire mental state processing. Soc Neurosci. 2009;1:18. [PubMed: 19670085]
15. Saxe R. Why and how to study Theory of Mind with fMRI. Brain Res. 2006;1079:57–65. [PubMed: 16480695]
16. Krummenacher P, Mohr C, Haker H, Brugger P. Dopamine, paranormal belief, and the detection of meaningful stimuli. J Cogn Neurosci. 2009 Jun 30; [Epub ahead of print] [PubMed: 19642883]
17. Flannelly KJ, Koenig HG, Galek K, Ellison CG. Beliefs, mental health, and evolutionary threat assessment systems in the brain. J Nerv Ment Dis. 2007;195:996–1003. [PubMed: 18091193]

Articles from Indian Journal of Psychiatry are provided here courtesy of Wolters Kluwer -- Medknow Publications

HRPacing ...

Description

Heart Rate Pacing is a technique used to stay within ones energy reserves. The anaerobic threshold (AT) is the heart rate at which aerobic energy surges. The threshold is often around about 60% of a ones maximum heart rate, though each person is different and an individual's threshold may vary from day to day or within a day.

(Note: Maximum heart rate is 220 minus ones age. For a 50 year old, 60% of maximum heart rate is (220 - 50) x 0.6 = 102 bpm.)

Features:

* Changes colour to indicate:

- Resting - (REST) Lavender

- Recovery (RECOVER) - Green (RHR + 10%)

- Exertion (EXERT) - Orange (RHR + 20%)

- Anaerobic Threshold (AT) - Red ((220-50)x0.6)

* Set an alert based on:

- reaching Anaerobic Threshold Zone, or

- custom set Maximum Heart Rate.

* Set the Anaerobic Threshold Tolerance from 0.6 (default) to 0.5 if desired.

* Set a custom interval between alerts (15 secs default).

* Displays 12/24 hour clock based on user settings in Fitbit profile.

[give_form id="3285"]

help me fund my ME treatment ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

you can pay for a monthly session by donating £71

you can pay for an individual progression plan by donating £71

you can pay for a medical review by donating £121

you can pay for a medical follow up by donating £121

you can pay for the individual assessment by donating £141

you can pay for a medical assessment by donating £187

Thank you very much !

help me fund my assessment treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for a medical assessment by donating £187

you can pay for an initial assessment by donating £141

you can pay for a medical review by donating £121

Thank you very much !

help me fund my preparation for rehabilitation treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

Thank you very much !

help me fund my rehabilitation treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for a monthly session by donating £71

Thank you very much !

help me fund my follow up treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for an individual progression plan by donating £71

you can pay for a medical follow up by donating £121

Thank you very much !

Skip to content