fragmented.ME …

donate to …

Please find below all the active research projects that fragmented.ME would be happy to encourage you to donate to.

If you know of any research needing donate to or research articles needing advocacy, please feel free to contact us using the ‘can I add a research donate to / article to your links page …’ in the accordion fly out below …

If you find any omissions, errors or something you feel is wrong, please feel free to contact us using the ‘I found an error on your website, where can I tell you?’ or the ‘Ask any other ?s here …’ in the accordion fly out below …

 

Help Fund My Healing via ME Treatment

I have severe ME/CFS. I’ve been ill since 1984, firstly mild, then moderate, and now severe. Five years ago I started to get much sicker and I am now housebound and often bedbound. Although, that said, I simply go from the bed to the settee and need to be lay flat as much as possible. So in reality I am also bedbound.

I applied to my GP to be referred to the Yorkshire Fatigue Clinic for specialist ME treatment, which as a UK citizen and my husband is a UK tax payer, I am entitled to. My GP approved it willingly, considering I was so sick and he couldn’t help me. But, when it went to the clinical commissioning group, for approval, it was refused on the grounds that they felt I could be treated in house by the Familiar Faces team. A year later and I am sicker and in the process of being discharged from my Familiar Faces team, who are not ME specialists anyway, and have not helped me one bit.

However, to be accepted by the Yorkshire Fatigue clinic I need my CCG to approve it or I have to self fund, pay for it myself.

I can appeal the previous decision, which I may well do now that I have evidence I am not getting the specialist treatment I need am entitled to. But this takes time and energy, that I don’t have.

So, I’m going down the pay myself route. The irony is, I don’t work and I don’t have an income. I can’t claim benefit because my husband earns too much. So I am lacking vital resources of energy, to appeal, and money to pay. We are not rich, we are two people living on one income and it is difficult.

This is where I am hoping the kindness, empathy and love of others will help out.

Please, please, donate what you can using the form at the bottom of the page or on any corresponding individual page of the plan.

I will add regularly the costs I’ve outlaid and the upcoming costs below.

If you have any further questions about this lease do not hesitate to contact me using the ‘contact (ME treatment ...)’ form.

Below, I will explain a little about the treatment plan and corresponding costs.

The Treatment Plan & Costs

The treatment plan is prescribed on personal basis, especially for some at the severe end of ME. I won’t be expected to join any group sessions, in the beginning and maybe not ever. I won’t travel to appointments, everything will be done via zoom , telephone, or Skype. I also won’t need the medical assessment because I have a diagnosis of ME, but I may need further investigations that I may have to pay for if my GP refuses them.

See price list ...

The STEP Programme

The programme I will be doing with them is known as The STEP Programme (see below for information taken from the Yorkshire Fatigue Clinic website), and is used in conjunction with their understanding of ME/CFS using the dysregulation model.

The STEP Programme focuses on helping you to understand the things that can affect your symptoms.  It then takes you through stages of stabilising and gradually increasing energy and activity levels.  A qualified therapist will assess your needs and how you can use the programme to optimise your recovery.

Step Programme ...

I sincerely hope to understand my illness better and accept my limitations more too. It’s been a very long time coming considering I first got ill in 1984.

My Healing Journey ...

I know this title smacks of toxic positivity but I have no idea what else to call it and I do want to document my journey. So for now, this is the category and title I will use to document, and for you to follow, this journey through.

Just to add, it’s not such a far fetched title as I do have hope that one day I will heal and that journey will have to start somewhere, and so it could be here. I also believe that if I am registered with a specialist ME clinic then I will be able to avail myself of targeted medicines and treatments as and when they become available.

That said, I want you to know that right now, in 2021, I do not believe there is a cure for ME and I know that I cannot heal from ME right now. Presently, scientific expertise interest regarding ME is very lacking but the knowledge of a few dedicated and sincere scientists is progressing exponentially and so I do have hope that the future may hold healing for us all.

Nevertheless, I can work with my body and for myself, to consolidate where I am right now, which will be as good as healing because I am consistently making myself sicker and it needs to stop before I kill my self. This is not a suicide pronunciation, this is down to pushing my body so much that it can no longer go on.

KAROSHI: (in Japan) death caused by overwork or job-related exhaustion (in the case of ME, our bodies are so shot at that we push it over the edge and die)

Funding ...

If you can help in anyway please go to the corresponding tab to donate, it will be very much appreciated and gladly received.

help fund my ME treatment via Yorkshire Fatigue Clinic …

Overall Funding ...

If you can help in anyway please go to the corresponding tab to donate, it will be very much appreciated and gladly received.

To help fund the:


Please Donate Here...

Assessment

Medical Assessment
Cost £187.00.

Initial Assessment
Cost £141.00.

Medical Review
Cost £121.00.

Preparation for Rehabilitation

Introductory Workshop
Cost £65.00.

Individual Care Plan
Cost £71.00.

Rehabilitation

Stabilisation Programme (group sessions)
Cost £56.00 per session.

Tolerance Programme (group sessions)
Cost £56.00 per session.

Individual Programme (monthly sessions)
Cost £71.00 per session.

Follow Up

Medical Follow Up
Cost £121.

Individual Progression Plan
Cost £71.00.

help me fund my ME treatment ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

you can pay for a monthly session by donating £71

you can pay for an individual progression plan by donating £71

you can pay for a medical review by donating £121

you can pay for a medical follow up by donating £121

you can pay for the individual assessment by donating £141

you can pay for a medical assessment by donating £187

Thank you very much !

Assessment Treatments Funding ...

If you can help in anyway please go to the corresponding tab to donate, it will be very much appreciated and gladly received.

To help fund the:


Please Donate Here...

Assessment

Medical Assessment
Cost £187.00. Attended on : xx.xx.2021.
read about ...

Initial Assessment
Cost £141.00. Attended on : 27.04.2021.
read about ...

Medical Review
Cost £121.00. Attended on : xx.xx.2021.
read about ...

help me fund my assessment treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for a medical assessment by donating £187

you can pay for an initial assessment by donating £141

you can pay for a medical review by donating £121

Thank you very much !

Preparation for Rehabilitation Treatments Funding ...

If you can help in anyway please go to the corresponding tab to donate, it will be very much appreciated and gladly received.

To help fund the:


Please Donate Here...

Preparation for Rehabilitation

Introductory Workshop
Cost £65.00. Attended on : 13.03.2021.
read about ...

Individual Care Plan
Cost £71.00. Attended on : 01.06.2021.
read about ...

help me fund my preparation for rehabilitation treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

Thank you very much !

Rehabilitation Treatments Funding ...

If you can help in anyway please go to the corresponding tab to donate, it will be very much appreciated and gladly received.

To help fund the:


Please Donate Here...

Rehabilitation

Stabilisation Programme (group sessions)
Cost £56.00. Attended on : I won't be attending these sessions because I cannot attend in a group environment, I am simply too unwell. So, all my treatments  will be conducted underneath the individual programme sessions ...

Tolerance Programme (group sessions)
Cost £56.00. Attended on : I won't be attending these sessions because I cannot attend in a group environment, I am simply too unwell. So, all my treatments will be conducted underneath the individual programme sessions ...

Individual Programme (monthly sessions)
Cost £71.00 per session.

IP : monthly session (1)
Cost £71.00. Attended on : 07.07.2021.
read about ...

help me fund my rehabilitation treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for a monthly session by donating £71

Thank you very much !

Follow Up Treatments Funding ...

If you can help in anyway please go to the corresponding tab to donate, it will be very much appreciated and gladly received.

To help fund the:


Please Donate Here...

Follow Up

Medical Follow Up
Cost £121. Attended on : xx.xx.20xx.
read about ...

Individual Progression Plan
Cost £71.00. Attended on : xx.xx.20xx.
read about ...

help me fund my follow up treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for an individual progression plan by donating £71

you can pay for a medical follow up by donating £121

Thank you very much !

fragmented.ME ... Awareness & Fundraisers

Awareness

The main reason I created the fragmented.ME ... website was to raise awareness for ME/CFS and other chronic and often misunderstood illnesses.

Fundraising

This year for ME Awareness I am fundraising for The ME Trust UK as part of ME Awareness 2021.

I am planning on reading ten books in ten months starting 12th May, which is international ME Awareness Day. At one time in my life I could have read ten books in ten days. But this challenge will be hard for me to do.

So please please if you can support me and help raise money for the ME Trust UK

YOU CAN DONATE BY CLICKING THE LINK BELOW:

ME Awareness Fundraising : Ten Books In Ten Months

Our Fundraiser(s) …

ME Awareness Fundraising : Ten Books In Ten Months

Awareness : ME Awareness Month 2021 ...

ME awareness day is 12th May ...

May 12th is Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) International Awareness Day. On this special day, most people with ME, even those in the severe category, try to raise awareness and highlight how others can support the millions of people who suffer from ME/CFS.

ME/CFS is a serious, long-term illness that affects many body systems. People with ME/CFS have severe fatigue and sleep problems. ME/CFS symptoms may get worse even after minor physical, mental, or emotional tasks or effort. This phenomenon is known as post-exertional malaise (PEM). Other symptoms can include problems with thinking and concentrating, pain, and dizziness. Often, people with ME/CFS may not be able to do their usual activities. Many adults with ME/CFS are unable to work and long-term unemployment often brings further hardship. When children have this illness, their education is often affected.

What I Am Doing To Raise Awareness & Funding For Research

I am fundraising for The ME Trust UK as part of ME Awareness 2021.

I am going to read 10 books in 10 months and document them below (this post will be updated regularly so please book mark it and come back).

Please click the link above to donate and help me raise as much money as we can to The ME Trust UK.

I have been sick since 1984. It took till 2001 for doctors to diagnose me with ME. Initially, I was mildly sick then moderately but in recent years I’ve progressed to being severely affected. I am housebound and often bedbound for months on end.

I really want to raise awareness and to raise money to help research #endME.

I am planning on reading ten books in ten months starting 12th May, which is international ME Awareness Day. At one time in my life I could have read ten books in ten days. But this challenge will be hard for me to do.

So please please if you can support me and help raise money for the ME Trust UK

YOU CAN DONATE BY CLICKING THE LINK BELOW:

ME Awareness Fundraising : Ten Books In Ten Months

Help Fund My Healing via ME Treatment

I have severe ME/CFS. I’ve been ill since 1984, firstly mild, then moderate, and now severe. Five years ago I started to get much sicker and I am now housebound and often bedbound. Although, that said, I simply go from the bed to the settee and need to be lay flat as much as possible. So in reality I am also bedbound.

I applied to my GP to be referred to the Yorkshire Fatigue Clinic for specialist ME treatment, which as a UK citizen and my husband is a UK tax payer, I am entitled to. My GP approved it willingly, considering I was so sick and he couldn’t help me. But, when it went to the clinical commissioning group, for approval, it was refused on the grounds that they felt I could be treated in house by the Familiar Faces team. A year later and I am sicker and in the process of being discharged from my Familiar Faces team, who are not ME specialists anyway, and have not helped me one bit.

However, to be accepted by the Yorkshire Fatigue clinic I need my CCG to approve it or I have to self fund, pay for it myself.

I can appeal the previous decision, which I may well do now that I have evidence I am not getting the specialist treatment I need am entitled to. But this takes time and energy, that I don’t have.

So, I’m going down the pay myself route. The irony is, I don’t work and I don’t have an income. I can’t claim benefit because my husband earns too much. So I am lacking vital resources of energy, to appeal, and money to pay. We are not rich, we are two people living on one income and it is difficult.

This is where I am hoping the kindness, empathy and love of others will help out.

Please, please, donate what you can using the form at the bottom of the page or on any corresponding individual page of the plan.

I will add regularly the costs I’ve outlaid and the upcoming costs below.

If you have any further questions about this lease do not hesitate to contact me using the ‘contact (ME treatment ...)’ form.

Below, I will explain a little about the treatment plan and corresponding costs.

The Treatment Plan & Costs

The treatment plan is prescribed on personal basis, especially for some at the severe end of ME. I won’t be expected to join any group sessions, in the beginning and maybe not ever. I won’t travel to appointments, everything will be done via zoom , telephone, or Skype. I also won’t need the medical assessment because I have a diagnosis of ME, but I may need further investigations that I may have to pay for if my GP refuses them.

See
price list ...

The STEP Programme

The programme I will be doing with them is known as The STEP Programme (see below for information taken from the Yorkshire Fatigue Clinic website), and is used in conjunction with their understanding of ME/CFS using the dysregulation model.

The STEP Programme focuses on helping you to understand the things that can affect your symptoms.  It then takes you through stages of stabilising and gradually increasing energy and activity levels.  A qualified therapist will assess your needs and how you can use the programme to optimise your recovery.

Step Programme ...

I sincerely hope to understand my illness better and accept my limitations more too. It’s been a very long time coming considering I first got ill in 1984.

My Healing Journey ...

I know this title smacks of toxic positivity but I have no idea what else to call it and I do want to document my journey. So for now, this is the category and title I will use to document, and for you to follow, this journey through.

Just to add, it’s not such a far fetched title as I do have hope that one day I will heal and that journey will have to start somewhere, and so it could be here. I also believe that if I am registered with a specialist ME clinic then I will be able to avail myself of targeted medicines and treatments as and when they become available.

That said, I want you to know that right now, in 2021, I do not believe there is a cure for ME and I know that I cannot heal from ME right now. Presently, scientific expertise interest regarding ME is very lacking but the knowledge of a few dedicated and sincere scientists is progressing exponentially and so I do have hope that the future may hold healing for us all.

Nevertheless, I can work with my body and for myself, to consolidate where I am right now, which will be as good as healing because I am consistently making myself sicker and it needs to stop before I kill my self. This is not a suicide pronunciation, this is down to pushing my body so much that it can no longer go on.

KAROSHI: (in Japan) death caused by overwork or job-related exhaustion (in the case of ME, our bodies are so shot at that we push it over the edge and die)

Funding ...

If you can help in anyway please go to the corresponding tab to donate, it will be very much appreciated and gladly received.

To help fund the:


Please Donate Here...

Assessment

Medical Assessment
Cost £187.00.

Initial Assessment
Cost £141.00.

Medical Review
Cost £121.00.

Preparation for Rehabilitation

Introductory Workshop
Cost £65.00.

Individual Care Plan
Cost £71.00.

Rehabilitation

Stabilisation Programme (group sessions)
Cost £56.00 per session.

Tolerance Programme (group sessions)
Cost £56.00 per session.

Individual Programme (monthly sessions)
Cost £71.00 per session.

Follow Up

Medical Follow Up
Cost £121.

Individual Progression Plan
Cost £71.00.


Please Donate Here...

Blue Sunday 2021

I am going to take part in this. Not sure what or how yet, but come back regularly to catch updates.

More importantly, I’ll link all the ways Anna, the blue Sunday founder, is using to collect donations.

I’d like to highlight how important it is that you use these links direct so that Anna can get a more accurate and true figure as to how much in total has been donated through this effort. Anna has also requested that when making a donation you, please make reference to ‘Blue Sunday’ when using the donation page so that the charity can let me know the total amount donated to them.

I will post the total figure here once it has been compiled.

International

ME Action

Open Medicine Foundation

The U.K.

Action for M.E. Medicine Foundation

ME Association

ME Research UK

Invest in ME Research

The ME Trust

Smile for ME

Times Trust

Ireland

The Irish ME Association

South Africa

The ME/CFS Foundation South Africa

Australia 

Emerge Australia

help me fund my ME treatment ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

you can pay for a monthly session by donating £71

you can pay for an individual progression plan by donating £71

you can pay for a medical review by donating £121

you can pay for a medical follow up by donating £121

you can pay for the individual assessment by donating £141

you can pay for a medical assessment by donating £187

Thank you very much !

Major Gifts and Legacies

Major Gifts

A gift of £1,000 or more would make a significant difference to our work. If you are considering making a major gift to the ME Trust we would very much like to talk to you to ensure that your gift is spent on something important to you.

For example:

  • £1000 would enable us to make a short film to help train physiotherapists in techniques to help ME patients manage their sleep, rest and exercise
  • £5,000 would support the cost of an ME Nurse
  • £12,000 would provide a Doctor offering free face to face consultations to new patients in a clinic.
Legacies:

Our vision is to bring hope and transformational care to all affected by ME/CFS by developing a national network of trained doctors, nurses and healthcare professionals who understand this chronic illness and can support people with ME/CFS and their families and carers. One way to help us achieve this goal is to leave us a gift in your will. Once you have taken care of your family and loved ones, many people decide to give a final gift to the causes that they have been passionate about.

If you would like to know more about leaving a legacy to the ME Trust, please speak to Helen Winning, Chief Executive for a conversation in the strictest confidence. Contact h.winning@metrust.org.uk

Gift Aid your donation

If you are a UK taxpayer, every £1 you give will be worth 25p more to us, at no extra cost to you, if you Gift Aid it. Thank you.

Download a Gift Aid Declaration

Dr Keith Geraghty ME/CFS Research ...

Weʼre raising £25,000 to Continue Vital ME Research.

Head over to just giving to read more & donate to the crowdfunding page.

Dr. Keith Geraghty

Manchester

Dr. Geraghty undertakes ME/CFS research at the University of Manchester Centre for Primary Care, bringing together clinicians and techical staff. He has a wealth of research experience and understands the issues facing patients with ME/CFS. His work is internationally recognised.

Information about : The ME/CFS Research ...

Story

I am an unsalaried research fellow who relies on grant income. I am seeking funding to continue researching Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at the University of Manchester. I have made signficant headway over the past few years but I need your support to do even more. I am seeking crowdfunding to publish papers from existing projects and to do more work on the following topics:

- looking at diagnosis, care and treatment

- biases in RCTs of CBT and GET (taking on Bad Science)

- Bodily Distress Syndrome (DDS is a problematic illness label and why ME/CFS is not a BDS)

- Medically Unexplained Symptoms (why ME/CFS should not be considered an MUS)

Progress So Far

Myself and the team I have put together have not been afraid to take on bad science and misconceptions about ME/CFS. We have focused on research that improves diagnosis and treatment of ME/CFS. We are also working on educating colleagues and clinicians about the disease. To-date we have made significant progress:

We showed that CBT and Graded Exercise Therapy were not effective treatments for ME/CFS.

We analysed patient surveys and found Pacing helped patients most and GET worsened symptoms?

We highightled methodological flaws and biases in the PACE Trial.

We identified theoretical flaws and inconsistencies in the CBT Model of ME/CFS.

We invesigated the views and experiences of patients with severe ME/CFS and we presented a report of our findings to NICE UK as part of their review.

I published over 20 papers and articles on ME/CFS.

Where Will The Money Go?

All funds donated will be used on research and nothing will be spent on admin. It costs around £50,000 to salary 1 research fellow per year and with on-costs and extras this can be even higher, thus I believe we are very cost effective at doing ME-CFS research. £25,000 will allow me to dedicate considerable time days to work only on ME/CFS. Any additional funding received will be used to contract hire additional research staff or will be moved over to the following year to continue our work.

Communicating What We Do

I wish to use some of the donated funds to set up a dedicated website that will host media, videos and podcasts discussing our work and much more, along with links to our ongoing projects and publications. We wish to make our research findings much more accesible to all and to engage more with people living with ME/CFS and other researchers and health professionals.

Thank you all for your continuing support!

Keith

CISFA UK ...

Why We Need Your Help

Life can be incredibly tough, especially for those who have to deal with chronic illness(es). Thanks to your dedication and support, we are able to be there for anyone struggling to cope.

We aim to work with schools, workplaces, hospitals, and more to offer training and support. We can not do this without your help.

Contact

Call Our Support Line Today!
01625 462 286
or alternatively email us at
support@cisfauk.org
enquiries@cisfauk.org
media@cisfauk.org
Mon - Fri 9:00 am - 5:00 pm
Sat - Sun 10:00 am - 4:00 pm

Or simply donate ...

CISFA UK …

Do Your Own Fundraising

Whether its an active sporting event, personal challenge or virtual gaming marathon, we will support you throughout whatever fundraising idea you have.

We will provide you with:

  • Advice throughout your journey
  • Personalised fundraising package
  • CISFA T-shirt
  • Help in sharing your story

For further information get in touch today.

Contact Us For More Information

Call Our Support Line Today!
01625 462 286
or alternatively email us at
support@cisfauk.org
enquiries@cisfauk.org
media@cisfauk.org
Mon - Fri 9:00 am - 5:00 pm
Sat - Sun 10:00 am - 4:00 pm

Or simply donate ...

Celebration Fundraisers

Anniversaries, birthdays, weddings; whatever the occasion, show you care on your big day by inspiring friends and family to support a worthy cause.

Depending on the type of event, we can provide various party favours including:

  • Goody bags for your guests
  • Banners and guest place cards
  • donation boxes
  • And if you raise more than £300, we will send out personalised thank you cards

We'd love to part of your celebrations

Contact Us For More Information

Call Our Support Line Today!
01625 462 286
or alternatively email us at
support@cisfauk.org
enquiries@cisfauk.org
media@cisfauk.org
Mon - Fri 9:00 am - 5:00 pm
Sat - Sun 10:00 am - 4:00 pm

Or simply donate ...

Join An Event

We run fundraising events throughout the year, all you have to do is turn up and have fun!

You will also be able to find us at many festivals and markets up and down the country.

Keep up to date by joining our email subscription.

Contact Us For More Information 

Call Our Support Line Today!
01625 462 286
or alternatively email us at
support@cisfauk.org
enquiries@cisfauk.org
media@cisfauk.org
Mon - Fri 9:00 am - 5:00 pm
Sat - Sun 10:00 am - 4:00 pm

Or simply donate ...

ME Trust UK Active Projects ...

ME Trust UK : You are the reason we can provide vital services to people with ME. Donate today and help us bring hope and transformational care to all affected by ME/CFS.

Or simply donate ...

ME Trust UK Donations …

Single Donation

Make a single donation to support our work. All donations help bring hope to someone with ME/CFS.

Your donation of:

  • £25 will provide a counselling session for someone isolated by ME
  • £100 will provide a clinic session with a physiotherapist
  • £250 will provide a home visit by a Doctor for someone who is bedbound
  • Or choose your own amount.

Donate by Bank Transfer

Make a transfer to our account at CAF Bank :
Sort Code: 40-52-40
Account Number: 00021349

Please contact us to let us know about your donation.

Donate by Cheque

Please make cheques payable to The ME Trust and post to The ME Trust, 12 William Street, Windsor, SL4 1BA. You can download our donation form, to complete and send with your cheque.

Gift Aid your donation

If you are a UK taxpayer, every £1 you give will be worth 25p more to us, at no extra cost to you, if you Gift Aid it. Thank you.

Download a Gift Aid Declaration

Regular Donations

Regular donations enable us to plan ahead and expand our services. For the price of a coffee you can make a difference to the life of someone with ME.

  • £5 a month will provide regular emotional support for a parent caring for a bed bound child
  • £10 a month will provide regular follow up calls from a specially trained ME Nurse
  • £25 a month will enable a person who may have been waiting years for specialist medical advice to speak to a doctor with a very special understanding of their illness
  • Or choose your own amount.

Download a Standing order form and send your completed form to The ME Trust, 12 William Street, Windsor, SL4 1BA

Gift Aid your donation

If you are a UK taxpayer, every £1 you give will be worth 25p more to us, at no extra cost to you, if you Gift Aid it. Thank you.

Download a Gift Aid Declaration

Major Gifts and Legacies

Major Gifts

A gift of £1,000 or more would make a significant difference to our work. If you are considering making a major gift to the ME Trust we would very much like to talk to you to ensure that your gift is spent on something important to you.

For example:

  • £1000 would enable us to make a short film to help train physiotherapists in techniques to help ME patients manage their sleep, rest and exercise
  • £5,000 would support the cost of an ME Nurse
  • £12,000 would provide a Doctor offering free face to face consultations to new patients in a clinic.
Legacies:

Our vision is to bring hope and transformational care to all affected by ME/CFS by developing a national network of trained doctors, nurses and healthcare professionals who understand this chronic illness and can support people with ME/CFS and their families and carers. One way to help us achieve this goal is to leave us a gift in your will. Once you have taken care of your family and loved ones, many people decide to give a final gift to the causes that they have been passionate about.

If you would like to know more about leaving a legacy to the ME Trust, please speak to Helen Winning, Chief Executive for a conversation in the strictest confidence. Contact h.winning@metrust.org.uk

Gift Aid your donation

If you are a UK taxpayer, every £1 you give will be worth 25p more to us, at no extra cost to you, if you Gift Aid it. Thank you.

Download a Gift Aid Declaration

ME Research UK Active Projects ...

ME Research UK funds the work of a growing number of scientists in the UK and worldwide. Choose a category to read more about this research.

Or simply donate ...

ME Research UK (active projects) …

Claire Carter
Team Run for ME - Individual Half-Marathon/Marathon/10k/5k run or walk!

We are running and walking for ME Research UK because biomedical research into ME/CFS is urgently needed

“.....doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea (UNREST).

'ME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus. We've awarded 48 grants since 2000 and invested over £1.5million. But research is expensive and becoming more so every day. That’s the challenge we face, and that’s why we need your help.'

For this year's Walk for ME once again a group walk is out so on May 16th 2021 (to coincide with ME Awareness week) we will be doing our own individual half-marathons! From our houses wherever in the country, or the world, we are - some will be doing 10k, 5k running or walking (or cycling) and two of the team will be running a full marathon.

So far, our amazing team consists of Claire, Jo, Dom, Niki, Rachel, Katie, Anya, Robyn, Bridget, Michael, Emma, Caroline, Charlotte, Emma, Janet, Sarah, Rachel, Susan, Flic, Mel, Jolene, Riss, Christine, Vicky, Beccy & Rachel, Tracey & Darcy, Flora & Chris, Kira and Izy & Seth! 💙💜

We are all either parents or family & friends of some incredible young people who battle this devastating illness every day.

Thank you so much for visiting our page, your support would mean the absolute world. xxx

Head over to just giving to read more & donate ....

Scott Buchanan
Scott's Marathon du Mont Blanc 2021

Raising funds for ME Research UK because I have witnessed how stubborn ME sufferers can be.

Thanks for considering MER & also grateful that an ME condition is now recognised as a condition by medical professionals in spite of the challenges (right?)

I also appreciate MER and similar orgs who try and create a better future for sufferers and their families.

This post relates to me raising funds to complete  a 42km run through the alps with a 2730m altitude incline.

The reason for doing this and the 18 month training focus is driven by my frustration on ME sufferers who still are not being treated as seriously as they may wish.

On reflection, I am pushing 42 years old. Dad must have been around this age when his “lazy-itus” started !! 

In my fathers case, suffice to say he is now “not interested” (I suspect he has been let down too many times). Hand swellings and cold pain seems to be normal. (and acceptable!)

In his day dad was a high performing SAAA athlete and pro active in his professional and family life inclusive of travelling ( many times) throughout Europe  in a Vauxhall Cavalier with no air con and maintaining a healthy work life balance.

One day he became “tired” but wouldn’t “let on....” John Anderson (Gladiators ) used to support him as a coach. I don’t know John but understand he has an knack of getting the best out of athletic talent,...  I’m not sure he would have suffered (lazy) fool’s lightly hence it was really tough to learn of the viewpoints of medical professionals and others at the time as a growing child.

Dads medals and trophy’s have all been thrown away. I was young but do remember mum buying pretty much all of the local supermarket energy drinks for months on end. In spite of this dad didn’t have enough energy to get out of bed and yet there was “ nothing wrong with him.”

The purpose of this post is not for sympathy but more to recognise that this is a unique condition which could do with investment & Support to learn and identify routes to solutions for others.

I am aware ME research has evolved over last 20 years and I really hope we can continue progressing in this  science as we have ( not like my dad!! )

I believe MER https://www.meresearch.org.uk  has the right approach on this tough condition.

These days, COVID scenario.. I will be focussed on training and getting through this Mont Blanc challenge successfully.

How could a disease this common and this devastating have been forgotten by medicine?" Jennifer BreaME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus. We've awarded 53 grants since 2000 and invested over £1.7million. But research is expensive and becoming more so every day. That’s the challenge we face, and that’s why we need your help.

Head over to just giving to read more & donate ....

Miriam Simmonds
Miriam & Mendy’s Cross Country for ME

We are hiking 25km for ME Research UK because their research is vital in improving treatment

Myself and my husband (and our pup) will be hiking to Jerusalem from our home, finishing at the Western Wall (24.8km).

At the age of 14 years old, I had a virus that didn't go away, leading to Chronic Fatigue Syndrome. It took over a year to receive diagnosis and during that time my symptoms and pain from the illness were dismissed and doubted by medical staff as they struggled to fully understand the gravity of the illness and its effects on those suffering with it. Finally, upon clinical diagnosis, I was faced with negativity as doctors showed me a bleak future by telling me that this was an illness with zero chance of full recovery. Now I am young, healthy, and energetic, living the active lifestyle I was told would never happen. Recovery took me years, but it would have been a much smoother one if ME/CFS was an illness with more research, awareness, and understanding. I was constantly shocked at the lack of knowledge and understanding I was faced with, and I promised myself that if I ever got my health back it would be used to fight for those suffering like I did. Those ill with ME/CFS need the medical research and education so that they can be treated adequately and given the support and treatment they need to overcome the illness, which is achievable. This would lead to quicker diagnosis, more awareness of available treatments, and for doctors to be educated on the illness so that patients can receive support and validation which is sorely lacking yet so important. 

Join this campaign to give back and to raise much needed awareness of ME/CFS that affects so many people who may not receive the support from those around them from lack of understanding on the topic. Awareness is vital and can be the difference from failure to recovery. No-one should have to live with their symptoms and face the road to recovery alone and in silence. Any donation, large or small, will make a difference and be hugely appreciated.

Thank you!

Miriam and Mendy

Head over to just giving to read more & donate ....

Rachel Pearce
Rachel & Blossom Walk for Lula

We are walking every step for Lula for ME Research UK because Lula was diagnosed with ME in 2018

"....doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea ME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus. We've awarded 53 grants since 2000 and invested over £1.7million. But research is expensive and becoming more so every day. That’s the challenge we face, and that’s why we need your help.

Head over to just giving to read more & donate ....

Lee Jones
Lee’s Walk for ME

I am going to walk a marathon 26.2 miles for ME Research UK because My daughter ellie Jones suffers from M.E

"...my daughter ellie has suffered with ME for almost two years now, and like many people who suffer with this illness it has a massive impact on her life. It affects her in many ways constant back pain ,severe fatigue ,nausea and insomnia just to name a few. I will be walking a marathon on the 16th of may this year to raise vital funds for research into this terrible illness. .doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer BreaME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus. We've awarded 53 grants since 2000 and invested over £1.7million. But research is expensive and becoming more so every day. That’s the challenge we face, and that’s why we need your help.

Head over to just giving to read more & donate ....

Team Run For M.E. 2021 ...

ME Research UK is grateful once more to be chosen as one of the featured charities for 2021’s Walk for ME scheme. Covid-19 restrictions permitting and adhering to all social distancing and health advice, the initiative is most popular around ME Awareness Week. Walk for ME began in 2013 with the founders hoping that healthy family and friends of people with ME could help their loved ones by raising funds for charities looking to find answers to ME/CFS. They also believed that family and friends doing events would help raise awareness of ME outside the ME community. Over the years, sponsored walks, runs, swims, and climbs have been held across the U.K, Europe, the US, Australia and New Zealand and have raised over £160,000 for biomedical research into ME.

This year, ME Research UK has been chosen by its biggest team yet and it is all due to the efforts of Claire Carter.

“We are a team of 25 people (and counting!) all taking part in our own individual runs or walks from wherever we are in the world, on May 16th 2021, for Walk for ME and to coincide with ME Awareness Week. We are all either mums or friends and family of some incredible young people living with ME/CFS and we cannot thank everyone taking part enough for the totally brilliant support and enthusiasm! There’s still plenty of time to join the team if you fancy a challenge, and want to help raise vital funds and support important research into ME.

We currently have 2 people taking on a huge challenge and running a full marathon, at least 10 half-marathon runners, 9 x 10k runners (one with their dog!) and 4 walking 10k, one of which has been talked into walking a staggering distance of 13-17k from St Agnes to Portreath in Cornwall. We also have further friends and their children all ready to join in on the day, if restrictions will allow it.

What an amazing team!!

Please donate if you can and share our JustGiving page for more details, team photos, contact and updates. Thank you so much!
https://www.justgiving.com/fundraising/RunforME2021

Feel Inspired?

There is no minimum distance, no targets, and, although it runs principally through ME Awareness Week (2nd week in May), no set dates for Walk for ME. You choose when you wish to walk, the distance, the location and the charity to support. No matter what you do step-by-step, you will be supporting a great cause and also raising awareness with every stride.

Information on the scheme and how to get involved can be found on our website.

The End ME/CFS Project ...

The End ME/CFS Project encompasses OMF funded and facilitated research conducted within five ME/CFS Collaborative Research Centers (CRCs). OMF’s guiding strategy focuses on open, collaborative research so that precise diagnostic tools and life-changing treatments can be available to people with related chronic complex diseases as soon as possible.

Funding an internationally-based research network instead of single researchers ensures the stability and collaboration essential for an outcomes-focused, transparent, and multi-pronged approach to finding answers.

About ME

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS) affects over 20 million people.

Established in 2012, Open Medicine Foundation (OMF) leads the largest, concerted worldwide nonprofit effort to diagnose, treat, and  prevent ME / CFS and related chronic, complex diseases such as Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Post COVID.

OMF adds urgency to the search for answers by driving transformational philanthropy and investments into global research. We have raised over $28 Million from private donors, and facilitated and funded the establishment of five prestigious ME / CFS Collaborative Research Centers.

Please Donate

For very personal reasons, I 100% place my hope in The Open Medicine Foundation and would really appreciate it if you could show your appreciation for my writings on fragmented.ME blog ... by donating to their End ME/CFS Project, mentioning me, Denise from fragmented.ME, when you do donate. You have no idea how deeply this will be appreciated by the whole of the ME community. It will bring us closer to understanding this life destroying illness and in turn closer to a very much needed cure.

Or simply donate ...

Please send your message, submitting a link to your website, using the contact (research donate to / article suggestion) ... form, and we will review it and respond soon!

If you have any other suggestions for ‘anything’ you would like me to write about or if you would like to contribute your own piece to fragmented.ME, please contact me using this contact form.

Please send your question, using this contact (new question) ... form, and we will respond and add it here, if appropriate, soon!

If you have any other suggestions for ‘anything’ you would like me to write about or if you would like to contribute your own piece to fragmented.ME, please contact me using this contact form.

Last Updated on 06/04/2021 by fragmented_ME

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10 steps to practicing Radical Acceptance
according to DBT’s founder, Marsha Linehan:

 

1.  Observe that you are questioning or fighting reality (“it shouldn’t be this way”)

2.  Remind yourself that the unpleasant reality is just as it is and cannot be changed (“this is what happened”)

3.  Remind yourself that there are causes for the reality (“this is how things happened”)

4.  Practice accepting with your whole self (mind, body, spirit) - Use accepting self-talk, relaxation techniques, mindfulness and/or imagery

5.  List all of the behaviors you would engage in if you did accept the facts and then engage in those behaviors as if you have already accepted the facts

6.  Imagine, in your mind’s eye, believing what you do not want to accept and rehearse in your mind what you would do if you accepted what seems unacceptable

7.  Attend to body sensations as you think about what you need to accept

8.  Allow disappointment, sadness or grief to arise within you

9.  Acknowledge that life can be worth living even when there is pain

10.  Do pros and cons if you find yourself resisting practicing acceptance

Logo of ijpsych

2009 Oct-Dec; 51(4): 239–241.
doi: 10.4103/0019-5545.58285: 10.4103/0019-5545.58285
PMCID: PMC2802367
PMID: 20048445

The biochemistry of belief

Address for correspondence: Dr. TS Sathyanarayana Rao, Department of Psychiatry, JSS University, JSS Medical College Hospital, M.G. Road, Mysore - 570 004, India. E-mail: moc.oohay@91oarsst
This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

“Man is what he believes”

Anton Chekhov

Beliefs are basically the guiding principles in life that provide direction and meaning in life. Beliefs are the preset, organized filters to our perceptions of the world (external and internal). Beliefs are like ‘Internal commands’ to the brain as to how to represent what is happening, when we congruently believe something to be true. In the absence of beliefs or inability to tap into them, people feel disempowered.

Beliefs originate from what we hear - and keep on hearing from others, ever since we were children (and even before that!). The sources of beliefs include environment, events, knowledge, past experiences, visualization etc. One of the biggest misconceptions people often harbor is that belief is a static, intellectual concept. Nothing can be farther from truth! Beliefs are a choice. We have the power to choose our beliefs. Our beliefs become our reality.

Beliefs are not just cold mental premises, but are ‘hot stuff’ intertwined with emotions (conscious or unconscious). Perhaps, that is why we feel threatened or react with sometimes uncalled for aggression, when we believe our beliefs are being challenged! Research findings have repeatedly pointed out that the emotional brain is no longer confined to the classical locales of the hippocampus, amygdala and hypothalamus.[1] The sensory inputs we receive from the environment undergo a filtering process as they travel across one or more synapses, ultimately reaching the area of higher processing, like the frontal lobes. There, the sensory information enters our conscious awareness. What portion of this sensory information enters is determined by our beliefs. Fortunately for us, receptors on the cell membranes are flexible, which can alter in sensitivity and conformation. In other words, even when we feel stuck ‘emotionally’, there is always a biochemical potential for change and possible growth. When we choose to change our thoughts (bursts of neurochemicals!), we become open and receptive to other pieces of sensory information hitherto blocked by our beliefs! When we change our thinking, we change our beliefs. When we change our beliefs, we change our behavior.

A mention of the ‘Placebo’ is most appropriate at this juncture. Medical history is replete with numerous reported cases where placebos were found to have a profound effect on a variety of disorders. One such astounding case was that of a woman suffering from severe nausea and vomiting. Objective measurements of her gastric contractions indicated a disrupted pattern matching the condition she complained of. Then a ‘new, magical, extremely potent’ drug was offered to her, which would, the doctors proclaimed, undoubtedly cure her nausea. Within a few minutes, her nausea vanished! The very same gastric tests now revealed normal pattern, when, in actuality, she had been given syrup of ipecac, a substance usually used to induce nausea! When the syrup was presented to her, paired with the strong suggestion of relief of nausea, by an authority figure, it acted as a (command) message to the brain that triggered a cascade of self-regulatory biochemical responses within the body.[2] This instance dramatically demonstrates that the influence of placebo could be more potent than expected drug effect.

An important observation was that, part of the placebo response seemed to involve the meaning of the disorder or the illness to the individual. In other words, the person's belief or how she/he interprets (inter-presents or internally represents) directly governs the biological response or behavior. Another remarkable study involved a schizophrenic. This woman was observed to have split personality. Under normal conditions, her blood glucose levels were normal. However, the moment she believed she was diabetic, her entire physiology changed to become that of a diabetic, including elevated blood glucose levels.[3]

Suggestions or symbolic messages shape beliefs that in turn affect our physical well being. Several cases of ‘Disappearance of warts’ have been reported by Ornstein and Sobel wherein they ponder on how the brain translates the suggestions (sometimes using hypnosis) into systematic biochemical battle strategies such as chemical messengers sent to enlist the aid of immune cells in an assault on the microbe-induced miniature tumor or probably small arteries are selectively constricted, cutting off the vital nutrient supply to warts but not touching the neighboring healthy cells.[2]

Findings of carefully designed research indicate that our interpretation of what we are seeing (experiencing) can literally alter our physiology. In fact, all symptoms of medicine work through our beliefs. By subtly transforming the unknown (disease/disorder) into something known, named, tamed and explained, alarm reactions in the brain can be calmed down. All therapies have a hidden, symbolic value and influence on the psyche, besides the direct specific effect they may have on the body.

Just as amazingly life-affirming placebos are, the reverse, “Nocebo' has been observed to be playing its part too. It is associated with negative, life-threatening or disempowering beliefs. Arthur Barsky, a psychiatrist states that it is the patient's expectations – beliefs whether a drug or procedure works or will have side effects – that plays a crucial role in the outcome.[4]

The biochemistry of our body stems from our awareness.[5] Belief-reinforced awareness becomes our biochemistry. Each and every tiny cell in our body is perfectly and absolutely aware of our thoughts, feelings and of course, our beliefs. There is a beautiful saying ‘Nobody grows old. When people stop growing, they become old’. If you believe you are fragile, the biochemistry of your body unquestionably obeys and manifests it. If you believe you are tough (irrespective of your weight and bone density!), your body undeniably mirrors it. When you believe you are depressed (more precisely, when you become consciously aware of your ‘Being depressed’), you stamp the raw data received through your sense organs, with a judgment – that is your personal view – and physically become the ‘interpretation’ as you internalize it. A classic example is ‘Psychosocial dwarfism’, wherein children who feel and believethat they are unloved, translate the perceived lack of love into depleted levels of growth hormone, in contrast to the strongly held view that growth hormone is released according to a preprogrammed schedule coded into the individual's genes!

Providing scientific evidence to support a holistic approach to well being and healthcare, Bruce Lipton sheds light on mechanism underlying healing at cellular level. He emphasizes that ‘love’ is the most healing emotion and ‘placebo’ effect accounts for a substantial percentage of any drug's action, underscoring the significance of beliefs in health and sickness. According to him, as adults, we still believe in and act our lives out based on information we absorbed as children (pathetic indeed!). And the good news is, we can do something about the ‘tape’ our subconscious mind is playing (ol' silly beliefs) and change them NOW.[6] Further recent literature evidences provided knowledge based on scientific principles of biology of belief. There are limited studies on clinics of traditional beliefs and if we get more scientific data, we can use these traditional systems in clinical mental health management. Human belief system is formed by all the experiences learned and experimented filtered through personality.[7] The senses to capture inner and outer perceptions have higher brain potentials. Some questions that arise in this context are, does the integration and acceptance of these perceptions result in the establishment of beliefs? Does the establishment of these beliefs depend on proof demonstrations? The proofs might be the perceptions, which we can directly see or having scientific proof or custom or faith.[8,9] Beliefs are developed as stimuli received as trusted information and stored in the memory. These perceptions are generalized and established into belief. These beliefs are involved in the moral judgment of the person. Beliefs help in decision-making. Bogousslavsky and Inglin explained that, how some physicians were more successful by taking an account of patient beliefs. Beliefs influence factors involved in the development of psychopathology. They also influence the cognitive and emotional assessment, addictiveness, responses to false positives and persistent normal defensive reactions. Total brain function is required in stabilizing the belief and in responding to environmental system. Some of the brain regions and the neural circuits are very important in establishing beliefs and executing emotions. Frontal lobes play a major role in beliefs. Mental representations of the world are integrated with sub-cortical information by prefrontal cortex. Amygdala and Hippocampus are involved in the process of thinking and thus help in execution of beliefs. NMDA receptor is involved in thinking and in the development of beliefs. These beliefs are subjected to challenge. A belief that is subjected to more challenges becomes stronger. When a new stimulus comes, it creates distress in the brain with already existing patterns. The distress results in the release of dopamine (neurotransmitter) to transmit the signal.[10,11] Research findings of Young and Saxe (2008) revealed that medial prefrontal cortex is involved in processing the belief valence.[12] Right temporoparietal junction and precuneus are involved in the processing of beliefs to moral judgment. True beliefs are processed through right temporoparietal junction.[13,14] Saxe (2006) explained that beliefs judging starts at the age of five years citing example of judging of belief questions on short stories by the children.[15] Belief attribution involved activating regions of medial prefrontal cortex, superior temporal gyri and hippocampal regions. Studies by Krummenacher et al, have shown that dopamine levels are associated with paranormal thoughts suggesting the role of dopamine in belief development in the brain.[16] Flannelly et al, illustrated on how primitive brain mechanisms that evolved to assess environmental threats in related psychiatric disorders.[17] Also were highlighted the issues such as the way beliefs can affect psychiatric symptoms through these brain systems. The theories discussed widely are related to (a) link psychiatric disorders to threat assessment and (b) explain how the normal functioning of threat assessment systems can become pathological. It is proposed that three brain structures are implicated in brain disorders in response to threat assessment and self-defense: the regions are the prefrontal cortex, the basal ganglia and parts of limbic system. The functionality of these regions has great potential to understand mechanism of belief formation and its relevance in neurological functions/dysfunctions. Now it is clear that biology and physiology of belief is an open area for research both at basic and clinical level. The future directions are to develop validated experimental or sound theoretical interpretation to make ‘BELIEF’ as a potential clinical management tool.

Perceptual shifts are the prerequisites for changing the belief and hence changing the biochemistry of our body favorably. Our innate desire and willingness to learn and grow lead to newer perceptions. When we consciously allow newer perceptions to enter the brain by seeking new experiences, learning new skills and changed perspectives, our body can respond in newer ways –this is the true secret of youth. Beliefs (internal representations/interpretations) thus hold the magic wand of remarkable transformations in our biochemical profile. If you are chasing joy and peace all the time everywhere but exclaim exhausted, ‘Oh, it's to be found nowhere!’, why not change your interpretation of NOWHERE to ‘NOW HERE’; just by introducing a gap, you change your awareness – that changes your belief and that changes your biochemistry in an instant!

Everything exists as a ‘Matrix of pure possibilities’ akin to ‘formless’ molten wax or moldable soft clay. We shape them into anything we desire by choosing to do so, prompted, dictated (consciously or unconsciously) by our beliefs. The awareness that we are part of these ever-changing fields of energy that constantly interact with one another is what gives us the key hitherto elusive, to unlock the immense power within us. And it is our awareness of this awesome truth that changes everything. Then we transform ourselves from passive onlookers to powerful creators. Our beliefs provide the script to write or re-write the code of our reality.

Thoughts and beliefs are an integral part of the brain's operations. Neurotransmitters could be termed the ‘words’ brain uses to communicate with exchange of information occurring constantly, mediated by these molecular messengers. Unraveling the mystery of this molecular music induced by the magic of beliefs, dramatically influencing the biochemistry of brain could be an exciting adventure and a worth pursuing cerebral challenge.

REFERENCES

1. Candace Pert. Molecules of emotion: Why you feel the way you feel. New York, USA: Scribner Publications; 2003. ISBN-10: 0684846349.
2. Ornstein R, Sobel D. The healing brain: Breakthrough discoveries about how the brain keeps us healthy. USA: Malor Books; 1999. ISBN-10: 1883536170.
3. Robbins A. Unlimited power: The new science of personal excellence. UK: Simon and Schuster; 1986. ISBN 0-7434-0939-6.
4. Braden G. The spontaneous healing of belief. Hay House Publishers (India) Pvt. Ltd; 2008. ISBN 978-81-89988-39-5.
5. Chopra D. Ageless body, timeless mind: The quantum alternative to growing old. Hormony Publishers; 1994. ISBN -10: 0517882124.
6. Lipton B. The biology of belief: Unleashing the power of consciousness, matter and miracles. Mountain of Love Publishers; 2005. ISBN 978-0975991473.
7. Bogousslavsky J, Inglin M. Beliefs and the brain. Eur Neurol. 2007;58:129–32. [PubMed: 17622716]
8. Gundersen L. Faith and healing. Ann Intern Med. 2000;132:169–72. [PubMed: 10644287]
9. Mueller PS, Plevak DJ, Rummans TA. Religious involvement, spirituality, and medicine: Implications for clinical practice. Mayo Clin Proc. 2001;76:1225–35. [PubMed: 11761504]
10. Patel AD, Peretz I, Tramo M, Labreque R. Processing prosodic and musical patterns: A neuropsychological investigation. Brain Lang. 1998;61:123–44. [PubMed: 9448936]
11. Tramo MJ. Biology and music. Music of the hemispheres. Science. 2001;291:54–6. [PubMed: 11192009]
12. Young L, Saxe R. The neural basis of belief encoding and integration in moral judgment. Neuroimage. 2008;40:1912–20. [PubMed: 18342544]
13. Aichhorn M, Perner J, Weiss B, Kronbichler M, Staffen W, Ladurner G. Temporo-parietal junction activity in theory-of-mind tasks: Falseness, beliefs, or attention. J Cogn Neurosci. 2009;21:1179–92. [PubMed: 18702587]
14. Abraham A, Rakoczy H, Werning M, von Cramon DY, Schubotz RI. Matching mind to world and vice versa: Functional dissociations between belief and desire mental state processing. Soc Neurosci. 2009;1:18. [PubMed: 19670085]
15. Saxe R. Why and how to study Theory of Mind with fMRI. Brain Res. 2006;1079:57–65. [PubMed: 16480695]
16. Krummenacher P, Mohr C, Haker H, Brugger P. Dopamine, paranormal belief, and the detection of meaningful stimuli. J Cogn Neurosci. 2009 Jun 30; [Epub ahead of print] [PubMed: 19642883]
17. Flannelly KJ, Koenig HG, Galek K, Ellison CG. Beliefs, mental health, and evolutionary threat assessment systems in the brain. J Nerv Ment Dis. 2007;195:996–1003. [PubMed: 18091193]

Articles from Indian Journal of Psychiatry are provided here courtesy of Wolters Kluwer -- Medknow Publications

HRPacing ...

Description

Heart Rate Pacing is a technique used to stay within ones energy reserves. The anaerobic threshold (AT) is the heart rate at which aerobic energy surges. The threshold is often around about 60% of a ones maximum heart rate, though each person is different and an individual's threshold may vary from day to day or within a day.

(Note: Maximum heart rate is 220 minus ones age. For a 50 year old, 60% of maximum heart rate is (220 - 50) x 0.6 = 102 bpm.)

Features:

* Changes colour to indicate:

- Resting - (REST) Lavender

- Recovery (RECOVER) - Green (RHR + 10%)

- Exertion (EXERT) - Orange (RHR + 20%)

- Anaerobic Threshold (AT) - Red ((220-50)x0.6)

* Set an alert based on:

- reaching Anaerobic Threshold Zone, or

- custom set Maximum Heart Rate.

* Set the Anaerobic Threshold Tolerance from 0.6 (default) to 0.5 if desired.

* Set a custom interval between alerts (15 secs default).

* Displays 12/24 hour clock based on user settings in Fitbit profile.

ME Awareness Fundraising : Ten Books In Ten Months

 

I am fundraising for The ME Trust UK as part of ME Awareness 2021

I will be fundraising for ten months starting in May 2021 through to end of February 2022.

Please take the time to read what it is about and donate if you can.

I am going to read 10 books in 10 months and document them on my ‘ten books in ten months ...’ page.

Please click the link above or below to donate and help me raise as much money as we can
for The ME Trust UK

I have been sick since 1984. It took till 2001 for doctors to diagnose me with ME.
Initially, I was mildly sick then moderately but in recent years I’ve progressed to being severely affected.
I am housebound and often bedbound for months on end.

I really want to raise awareness and to raise money to help research #endME.

I am planning on reading ten books in ten months starting 12th May, which is international ME Awareness Day.
At one time in my life I could have read ten books in ten days. But this challenge will be hard for me to do.

So please please if you can support me and help raise money for the ME Trust UK

YOU CAN DONATE BY CLICKING THE LINK BELOW

ME Awareness Fundraising : Ten Books In Ten Months

[give_form id="3285"]

help me fund my ME treatment ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

you can pay for a monthly session by donating £71

you can pay for an individual progression plan by donating £71

you can pay for a medical review by donating £121

you can pay for a medical follow up by donating £121

you can pay for the individual assessment by donating £141

you can pay for a medical assessment by donating £187

Thank you very much !

help me fund my assessment treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for a medical assessment by donating £187

you can pay for an initial assessment by donating £141

you can pay for a medical review by donating £121

Thank you very much !

help me fund my preparation for rehabilitation treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

Thank you very much !

help me fund my rehabilitation treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for a monthly session by donating £71

Thank you very much !

help me fund my follow up treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for an individual progression plan by donating £71

you can pay for a medical follow up by donating £121

Thank you very much !

ME Awareness Fundraising : Ten Books In Ten Months

 

I am fundraising for The ME Trust UK as part of ME Awareness 2021

I will be fundraising for ten months starting in May 2021 through to end of February 2022.

You will see this pop once in each week that you visit my site during this ten month period.

Please take the time to read what it is about and donate if you can.

I am going to read 10 books in 10 months and document them on my ‘ten books in ten months ...’ page.

Please click the link above or below to donate and help me raise as much money as we can
for The ME Trust UK

I have been sick since 1984. It took till 2001 for doctors to diagnose me with ME.
Initially, I was mildly sick then moderately but in recent years I’ve progressed to being severely affected.
I am housebound and often bedbound for months on end.

I really want to raise awareness and to raise money to help research #endME.

I am planning on reading ten books in ten months starting 12th May, which is international ME Awareness Day.
At one time in my life I could have read ten books in ten days. But this challenge will be hard for me to do.

So please please if you can support me and help raise money for the ME Trust UK.

YOU CAN DONATE BY CLICKING THE LINK BELOW

ME Awareness Fundraising : Ten Books In Ten Months

help me fund my ME treatment ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

you can pay for a monthly session by donating £71

you can pay for an individual progression plan by donating £71

you can pay for a medical review by donating £121

you can pay for a medical follow up by donating £121

you can pay for the individual assessment by donating £141

you can pay for a medical assessment by donating £187

Thank you very much !

help me fund my assessment treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for a medical assessment by donating £187

you can pay for an initial assessment by donating £141

you can pay for a medical review by donating £121

Thank you very much !

help me fund my preparation for rehabilitation treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for the introductory workshop by donating £65

you can pay for an individual care plan by donating £71

Thank you very much !

help me fund my rehabilitation treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for a monthly session by donating £71

Thank you very much !

help me fund my follow up treatments ...

... help me fund my ME treatment ...

you can choose to donate as much or as little by sliding the slider along

you can pay for an individual progression plan by donating £71

you can pay for a medical follow up by donating £121

Thank you very much !

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