I am Denise, a former educator, unable to live life as I knew it, due to a chronic illness known as ME/CFS. I have severe ME and lots of other illness that seem to go hand in hand with ME. I use fragmented.ME blog … to educate and to raise awareness of my conditions, and to offer support to those also struggling with chronic illness
I am too sick to leave the house and so I don’t go out anywhere.
But I do love a latte … maybe you could buy ME one to show appreciation for and to also support my work …
… important ME quotes …
“[ME/CFS patients] feel effectively the same every day as an AIDS patient feels two months before death; the only difference is that the symptoms can go on for never-ending decades.” ~ Prof. Mark Loveless, Head of the AIDS and ME/CFS Clinic at Oregon Health Sciences University.
The National Institute of Health and Care Excellence (NICE) estimates the prevalence of CFS / ME to be ‘at least’ 0.2% to 0.4% of the UK population, implying up to 1 in 250 people affected, or 260,000 in total.
The CDC estimates that one million people in the US have ME/CFS and as many as 17-24 million people worldwide have ME/CFS. A recent UK biobank study places that estimate at 30 million. In 2015, the Institute of Medicine Report estimated there were between 836,000 and 2.5 million ME/CFS patients in the United States.