catch up : 18.10.2021 …
Fortnightly Catch Up 18.10.2021 …
I am still here trying to keep my self motivated and my head above water. I am struggling and realise I’ve bitten off way more than I can chew in trying to be regular in this little online space.
That said, I will keep trying …
* Don’t forget whenever you see MiA … it means I have been unable to journal anything on that day due to serious illness or just because I was unable to do anything, except keep my head above water, on that particular day.
What’s New …
My body feels like it’s getting sicker with each day. I am angry, frustrated, and very sad about the lack of kindness and the inability to ‘do no harm’ from the medical profession.
However, I am encouraged by the research progress being done. There’s many pieces of research happening or even finishing right now that make me feel hopeful. Even if it’s not for myself but for those who follow and end up with ME. I can’t regurgitate them here because I barely remember them once I’ve read them, I simply know they make me feel hopeful.
What’s Important …
If you know someone with ME …
believe them …
hold them close …
and don’t let them use energy they don’t have … they will most certainly get sicker if you do …
Diary (04.10.2021-17.10.2021) …
Monday …
I’ve been reading much research of late that makes me feel more hopeful.
If you would like to read all the latest information regarding ME and other related illness then please head over to Health Rising, you won’t be disappointed.
Tuesday …
Today, for the first time in like forever I didn’t wake up with a bad headache or a migraine. I didn’t have to take pain medication on opening my eyes.
tTo be honest it was rather unsettling …
The last time this happened I had a major migraine the following day.
Maybe from medication withdrawal or maybe this is an aura … who knows …
What kind of fuckery is this …
Wednesday …
MiA …
Today I woke at 04:04 with a major headache and an inability to get back to sleep. But I finally did fall asleep and then woke again at 08:15. I had a lazy morning in bed making phone calls to insurance companies and then when I did get up I had a bath and washed my hair for the first time in three weeks …
WoW … I feel clean …
Thursday …
MiA …
migraine …
Friday …
MiA …
migraine …
Saturday …
MiA …
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Sunday …
MiA …
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Monday …
MiA …
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Tuesday …
MiA …
Today is our 26th wedding anniversary …
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Wednesday …
MiA …
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Thursday …
MiA …
lost to the illness again … sorry …
Friday …
MiA …
M I G R A I N E . . .
Saturday …
MiA …
M I G R A I N E S T I L L . . .
Sunday …
MiA …
WoW I had an episode last night that was the scariest thing to happen so far with this dreaded illness. I couldn’t even make it up the stairs. I actually had to crawl up, and crawl very fast too otherwise I might have passed out.
I am not fully recovered but feel far less closer to death than I did last night …
I will try to document this once I am well enough …
…
fragmented.ME xXx
fragmented_ME
My birth name is Denise, but I’m know as Bella to those who love me. I have a first class honours degree in education & psychology and a strong passion to keep learning and educating others ... I have severe ME/CFS and lots of other chronic illnesses and I started this blog as an expansion to my instagram page, where I advocate for chronic illness. I am married and have two grown up boys, or should I say young men. I have three gorgeous grandchildren, one boy and two girls. And despite being chronically sick and housebound I am mostly happy. 🥰
