catch up april 2022 …
Catch Up April 2022 …
It’s April already. I’ve not yet left the house this year and I’ve only washed my hair twice. This is the reality of living with severe ME. Yet, for whatever reason there really is no support or help for ME.
I will probably concentrate a lot on this aspect of ME, in the months to come, because it really is having a heavy impact on my spirit.
Why am I so unwell … but have so little support …
April has been very difficult …
* Don’t forget whenever you see MiA … it means I have been unable to journal anything on that day due to serious illness or just because I was unable to do anything, except keep my head above water, on that particular day.
What’s New …
I definitely like this new monthly journal method. It feels easier especially seen as I made the whole 12 month of templates in one go, at the start of the year. I simply fill each day in as, or when, I can.
Also, when I missed days or weeks due to severe poorliness it doesn’t feel as bad when presented as a whole month over a fortnight.
What’s Important …
Next month is ME awareness month and I would like to do something special for it. But as yet, I’ve no idea what …
I have decided to do a special page called ‘what ME is to me …’ , it will be updated daily, if possible, so bookmark it and please read it every day … share if you can …
You can read my ME awareness blog … and offer any suggestions if you wish, please.
Diary (April 2022) …
1st …
Today we’ve own the plot we now live on for 7 years. WoW where has that time gone?
2nd …
MiA …
3rd …
MiA …
4th …
MiA …
Yes, it’s Monday again. A new week. A new start.
I have been missing much due to extra pain and headaches.
Mini update: My father-in-law is in the hospital, more than likely dying. He is 98 and had another fall. He has had five this year so far. But this one was an extra bad one. It seems as though he collapsed as he was getting his lunch and ended pulling the microwave on top of him. He was flat out on the floor for over two hours before he could crawl to a phone. And then being bewildered rang his 97 year old sister, who rang my husband. To cut a long story short, he was alone and on the floor for over four hours until the paramedics got to him. We live 3 hours away and although my husband went to him instantly, after realising what had happened, he never got there before the paramedics. So far, during my FIL’s stay in hospital, we have had two night / early hours phone calls where it has been touch and go. So far, he’s still hanging in, but it really isn’t looking good.
All of this, has meant my husband has been chasing up and down the motorway, which also means that I am on my own a lot more and having to get food and drinks for myself. This has had a huge knock on effect on my pain, migraine, and energy levels.
5th …
MiA …
6th …
MiA …
7th …
MiA …
8th …
MiA …
9th …
MiA …
My boy_2 came to stay …
10th …
MiA …
11th …
MiA …
My boy_2 has gone home … it’s been nice but very hard …
12th …
MiA …
13th …
MiA …
14th …
MiA …
Today has been a day full of pain … physically and emotionally … I really cannot and do not want to carry on like this …
It’s just too much …
Imagine waking up every day not sure if you can get up, take a shower, brush your teeth, comb your hair, eat a meal. Chronic illness requires learning the balance between surrendering and fighting. And no one even knows you are in a battle.
15th …
MiA …
16th …
MiA …
17th …
MiA …
18th …
MiA …
19th …
MiA …
20th …
MiA …
21st …
MiA …
Worse night and day I’ve had in a very long time …
Sicker than I have been in ages …
22nd …
MiA …
23rd …
MiA …
24th …
MiA …
25th …
MiA …
26th …
MiA …
27th …
MiA …
28th …
MiA …
I got a new iPhone this morning. Mine is so so slow it’s not true. However, it arrived and I had to open the box, look at it, and out it back in the box. I am not well enough to deal with it. That is an indication of how sick I am, when getting a new phone is too much to deal with.
I got the iPhone 13. I wanted the pro but couldn’t afford it. WTF are these prices. I paid £729 for mine with 10% cash back (£72.90) and 4% Quidco (£11.66) and 0% finance for 12 months. Very … the only way to buy anything Apple. Don’t buy the latest, and only buy when they’re on offer. That way you’ll get it quite a bit cheaper than everywhere else. Plus, I am selling my old iPhone 8 Plus (£000.00) and my iPhone XS Max (£000.00) (I will update the prices accordingly, once they’re sold) (both on eBay) to offset the overall cost.
29th …
MiA …
dentist for a checkup and a filling that fell out in February … I hate the dentist, not mine personally, just the idea of the dentist …
30th …
MiA …
Sorry for such a long absence. This might be the hardest month I’ve had in like years.
… I am really struggling …
fragmented.ME xXx
fragmented_ME
My birth name is Denise, but I’m know as Bella to those who love me. I have a first class honours degree in education & psychology and a strong passion to keep learning and educating others ... I have severe ME/CFS and lots of other chronic illnesses and I started this blog as an expansion to my instagram page, where I advocate for chronic illness. I am married and have two grown up boys, or should I say young men. I have three gorgeous grandchildren, one boy and two girls. And despite being chronically sick and housebound I am mostly happy. 🥰
