my healing journey : Step : 20.04.2022 …

My Healing Journey 20.04.2022 …

Active Stabilisation Session (8) …

I pre-booked this session the minute we finished the Active Stabilisation Session (7) …, working it around YFC_J afternoon availability and leaving enough time for my recovery, which never seems to happen these days.

I am still learning so many new skills and I am very eager to keep going with this part of the programme.

Preparation & Setting Up …

Because I no longer need to self fund I don’t get a bill, yaaay … but as soon as the session was over I also received the details for my next appointment. We are still sticking with landline telephone calls for now.

What’s New …

Since my last session with YFC_J I have been extremely unwell and unable to do a thing …

What’s Important …

That I keep my spirit up … don’t get down about it all even though it’s devastating …

How / What Have I Been Doing Since My Last Session …

Not very good at all …

During the the time until my next appointment I need to:

• • get my hospital bag ready
  • write up notes about me
  • get the beta blockers
  • continue to eat less
  • breathe more
  • accept the dysautonomia issues and know they will right themselves eventually

#week 1 (14.03.2022-20.03.2022) : I have spent this week preparing a hospital bag … it’s now done and very heavy but at least I’ll have everything I need if I have to go to hospital … well almost, I still need to list my medications and some ‘about me’ notes …

#week 2 (21.03.2022-27.03.2022) : this week has been a very bad week … I completed the PiP form and left myself depleted … I had my neurology appointment but the consultant wouldn’t treat me with low dose beta blockers, mega high or not at all p, and so they prescribe another nasty medicine with lethal side effects … I do not expect I will actually take them … I am too sick to risk being any worse … 🤦🏻‍♀️ 🤦🏻‍♀️ …

#week 3 (28.03.2022-03.04.2022) : 😢 …

#week 4 (04.04.2022-10.04.2022) : 😢 😢 …

#week 5 (11.04.2022-17.04.2022) : 😢 😢 😢 …

#week 6 (18.04.2022-24.04.2022) : 😢 😢 😢 …

The Active Stabilisation Session (8) …

We kept it very short as I was too unwell.

But, the suggestion is:

• • print out medicine list
  • make some brief ‘about me’ notes
  • get low dose beta blockers
  • get anti histamines
  • spend a full month bedridden (doing absolutely nothing)

After The Active Stabilisation Session …

I felt very unwell and just needed to lay flat in the dark with my eyes closed.

The Here & Now …

I believe these suggestions are perfect and will do me good.

The Day After …

M I G R A I N E …

What Next …

do my utmost to implement this before my next appointment …

I will document as much information as I can in the next blog post in ‘my healing journey’. Please be aware that any information I share will always follow data protection guidelines and will never be enough for you to substitute it for your own programme

Can You Help With Costs …

Please go to my ‘fund my healing journey …’ page to donate.

 fragmented.ME xXx