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Sophia Mirza: a life reMEmbered …

Sophia Mirza (08.08.1973~25.11.2005)
was an active and outgoing young woman who loved to travel and to hike. She died on November 25, 2005, at age 32. Her death came nearly four years after the UK published a report on “CFS/ME” that recognised these patients were confronting medical arrogance and ignorance and just six years after contracting a “‘flu” that she could not recover from. Her mother helped to care for her bedridden daughter and told told many how medical professionals abused her by placing her, unattended, in a psychiatric ward after breaking down her door. Her initial autopsy showed no cause of death. An advocacy group arranged for a more extensive autopsy that found “unequivocal inflammatory changes” and many other abnormalities including a “fatty liver” now known to be caused by the ciguatera epitope. Sophia was the first person with myalgic encephalomyelitis to die and have the autopsy to prove she died from M.E. in England. There is a site dedicated to Sophia under Sophia’s Story.

Sophia Mirza ...

My birth name is Denise, but I’m know as Bella to those who love me. I have a first class honours degree in education & psychology and a strong passion to keep learning and educating others ... I have severe ME/CFS and lots of other chronic illnesses and I started this blog as an expansion to my instagram page, where I advocate for chronic illness. I am married and have two grown up boys, or should I say young men. I have three gorgeous grandchildren, one boy and two girls. And despite being chronically sick and housebound I am mostly happy. 🥰