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important DecodeME update #10 …

decodeME are doing a series of information posts in the lead up to the start of the DecodeME study. They are encouraging us to share them as much as we can.

Therefore, I will share them each time they are posted …. exactly as they are originally written by,

DecodeMe …

 fragmented.ME xXx

Blog article to follow is Copyright © DecodeME (2021).
Updated July 2022. From 

DecodeME study protocol published in BMC Neurology

The DecodeME study protocol has been accepted for publication by BMC Neurology. By publishing our study protocol in this way, we make sure that the design is transparent. This allows other researchers around the world to replicate and build upon the study with their own cohorts.

What is a protocol?

The study protocol is an essential part of a research project. It is a document outlining the design of a study, describing the objectives, methodology and overall organisation of the research to be carried out. It forms a template and guide to the research process as a whole.  The DecodeME protocol was approved by the funders and a Research Ethics Committee.

Why is it important?

It is a full description of the research study and acts as a ‘manual’ for members of the DecodeME research team to ensure that we all adhere to agreed methods.

What does it mean that it has been published?

BMC Neurology is an open access, peer-reviewed journal. The protocol is now available online for anyone – researchers, scientists, and people with ME alike – who wish to read exactly how the study is being carried out.

You can read the protocol here:

In the meantime, you can find out more about DecodeME and keep updated by visiting our website and signing up for updates.

Thank you so much for your patience. We can’t wait to share the study with you soon.

… Sign Up Here …

 © decodeME

My birth name is Denise, but I’m know as Bella to those who love me. I have a first class honours degree in education & psychology and a strong passion to keep learning and educating others ... I have severe ME/CFS and lots of other chronic illnesses and I started this blog as an expansion to my instagram page, where I advocate for chronic illness. I am married and have two grown up boys, or should I say young men. I have three gorgeous grandchildren, one boy and two girls. And despite being chronically sick and housebound I am mostly happy. 🥰