fragmented_ME
My birth name is Denise, but Iām know as Bella to those who love me. I have a first class honours degree in education & psychology and a strong passion to keep learning and educating others ... I have severe ME/CFS and lots of other chronic illnesses and I started this blog as an expansion to my instagram page, where I advocate for chronic illness. I am married and have two grown up boys, or should I say young men. I have three gorgeous grandchildren, one boy and two girls. And despite being chronically sick and housebound I am mostly happy. š„°
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a life unlived …
Itās my birthday, and Iāll cry if I want to, cry if I want to … you would cry too if it [ME/CFS] happened to you … Ā . . . Ā a life unlived Ā . . . Ā Ā . . . Ā šš¤š Ā . . . Ā itās my birthday … Crying tears of loss today.…
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catch up : 03.05.2021 …
Fortnightly Catch Up 03.05.2021 … Welcome to the latest catch up instalment. I know I donāt do that much but I have enjoyed doing these so far. Theyāve helped me realise and accept a bit more just how poorly I am and just how cathartic writing is. So without any further ado letās get on with this! *Ā Donāt forget whenever…
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ME an invisible illness …
I get really frustrated when people describe ME an an invisible illness. To me, calling ME invisible is potentially an offensive term to use. This is an illness that has had such profound effects on my life. I know it also affects millions of sufferers worldwide as well as those close to us too. Iāve no idea who actually coined…
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my top TEN impacts of ME …
Having ME has changed my life beyond all recognition. So I wanted to document for you the top impacts it has had on me. When I started to write them down, I found there are many more ways than ten that ME has impacted my life so I clumped categories together to cover as many as I could in one…
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my healing journey : AF : 27.04.2021 …
My Healing Journey 27.04.2021 … Assessment & Formulation Session … I booked this session on the same day I finished The Introductory Workshop … but I had to work it around getting over the workshop and some dental extractions I have booked in for the second week in April. Hence, the size of the gap in-between the two sessions. Preparation…
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ME awareness day 2021 …
The following article, #rememberME, is in support of ME awareness day (12.05.2021) and is taken from the ME Association website as it was originally written by, Emma Jeffries of the ME Association … Ā fragmented.ME xXx Blog article to follow is Copyright Ā© Emma Jefferies, Social Media Manager, ME Association (April 2021). Updated April 2021. From https://meassociation.org.ukĀ ME Awareness Day: Letās…
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ME disability scale …
The information below is taken from The ME Support as it was originally written by, Louise Sargent founder & webmaster of TheĀ ME Support website. Ā fragmented.ME xXx Blog article to follow is Copyright Ā© Louise Sargent (date unknown). Updated April 2021. From https://mesupport.co.ukĀ ME Disability Scale … This is an adaptation of the Expanded Disability Status Scale (EDSS). You should find…
