fragmented_ME
My birth name is Denise, but Iām know as Bella to those who love me. I have a first class honours degree in education & psychology and a strong passion to keep learning and educating others ... I have severe ME/CFS and lots of other chronic illnesses and I started this blog as an expansion to my instagram page, where I advocate for chronic illness. I am married and have two grown up boys, or should I say young men. I have three gorgeous grandchildren, one boy and two girls. And despite being chronically sick and housebound I am mostly happy. š„°
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my healing journey : IW : 13.03.2021 …
My Healing Journey 13.03.2021 … The introductory workshop was booked for today and because of lockdown itās going to be on zoom. I wanted to screen it on my TV but I havenāt been well enough to set this up and so we, my husband attended as well, had to do it via my tiny iPad mini, but this was…
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awareness : ME awareness month (2021) …
Awareness : ME Awareness Month 2021 … ME awareness day is 12thĀ May … May 12th is Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) International Awareness Day. On this special day, most people with ME, even those in the severe category, try to raise awareness and highlight how others can support the millions of people who suffer from ME/CFS. ME/CFS is…
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catch up : 08.03.2021 …
Fortnightly Catch Up 08.03.2021 … I have decided to write a journal blog post, every other Saturday. It will be like a mini catch up, but on a rather personal level. Itās going to be a post where I spill myself out. It will include the most poignant bits from each day. So some days will be much longer than…
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reflections & ramblings : 07.03.2021 …
Reflections & Ramblings : 07.03.21 Reflections & Ramblings … Itās Sunday afternoon (07.03.2021 @ 13:30) and I am lay on the settee, in our lounge, with the blinds closed to block out the brightness. I find myself reflecting on the many facets that there are to this illness and the many levels of severity changes that Iāve gone through during…
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research: Dr Keith Geraghty ME/CFS Research …
Research : Dr Keith Geraghty ME/CFS Research … Ā Ā© Dr Keith Geraghty WeŹ¼re raising Ā£25,000 to Continue Vital ME Research. Head over to just giving toĀ read more & donate to the crowdfunding page. Dr. Keith Geraghty Manchester Dr. Geraghty undertakes ME/CFS research at the University of Manchester Centre for Primary Care, bringing together clinicians and techical staff. He has a…
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research: DecodeME DNA Study …
Research : DecodeME Study … Ā Ā© DecodeMe Being described as the largest ever DNA study of ME/CFS. Head over to Join Us, and complete the form at the bottom of the page to register, to help create the worldās biggest study of the causes of ME/CFS. Both ME and non ME participants are required! Information about the DecodeME : The…
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my healing journey : 01.03.2021 …
My Healing Journey : 01.03.2021 … ME/CFS STEP Programme … Today I have taken a big step to do something that I have wanted to do for so very long. What was stopping me? Iām not sure … be it stubbornness because I knew I was entitled to it through the NHS or just plain old uncertainty. Either way, Iāve…
