fragmented_ME
My birth name is Denise, but Iām know as Bella to those who love me. I have a first class honours degree in education & psychology and a strong passion to keep learning and educating others ... I have severe ME/CFS and lots of other chronic illnesses and I started this blog as an expansion to my instagram page, where I advocate for chronic illness. I am married and have two grown up boys, or should I say young men. I have three gorgeous grandchildren, one boy and two girls. And despite being chronically sick and housebound I am mostly happy. š„°
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accessorise ā¦, clothing ā¦, going out ā¦, lingerie ā¦, mind * body * soul ..., PJs ā¦, staying in ā¦
me ME & clothes …
Wow … what a title … yep Iām going to talk about clothes, which I love but donāt actually get to wear much these days! Ā Ā … me ME & clothes … Ā Ā to be honest …Ā I want to talk about this so much and at the same timeĀ I donāt want to talk about it too. This is because,…
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exercise + ME + long covid & the BBC (part 2)
Exercise * ME * Long Covid & the (bloody) BBC … Read exercise + ME + long covid & the BBC (part 1) … … I know I already had my … … other recent post about this subject … … BUT … I donāt generally post twice in one day, especially about the same subject matter, but I feel…
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what you mean to me …
What YOU mean to me & ME … I donāt think I can articulate exactly what I want to put into words, but with this post I will try. Hopefully, between the waffle, you will see that what I really want to tell you, my reader and community, is what you mean to me. Actually, …Ā Ā Ā y o u…
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catch up : 19.04.2021 …
Fortnightly Catch Up 19.04.2021 … So I didnāt do too well with this last fortnight. So, Iāve decided that for the next month or so I am going to really try even harder and do the activity management using a HRM that I wrote about on myĀ āanaerobic threshold & ME …ā page. Because, I know for sure if I carry…
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research : The End ME/CFS Project …
Research : The End ME/CFS Project … Ā Ā© Open medicine Foundation The End ME/CFS Project encompasses OMF funded and facilitated research conducted within five ME/CFS Collaborative Research Centers (CRCs). OMFās guiding strategy focuses on open, collaborative research so that precise diagnostic tools and life-changing treatments can be available to people with related chronic complex diseases as soon as possible. Funding…
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lockdown … ending / changing …
In the UK, lockdown is ending / changing … But, I must point out … … lockdown is not easing or not ending for everyone … Today is the 12th April 2021, and lockdown in the UK is easing. Iāve no idea everything that is now actually allowed but some of the things now allowed are; hair & beauty salons…
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research : Post Mortem Tissue Bank …
Research : Post Mortem Tissue Bank … Ā Ā© ME Association … Donate your post-mortem tissue … The UK ME/CFS Post Mortem Tissue Bank and Tissue Donation The ME Association is the only M.E. charity involved in the collection of post mortem tissue samples from people diagnosed with the disease in the UK. Our long-term aim is to establish a national…
